I had heard of The boy in the moon on npr.
Another review.
The book has been written well. I liked the authors approach to understand the disorder. When I read that kids with CFC didnt have cancer like the ones with Noonan and that being the reason for the research funding, it seemed like news with an impact.
When the author finds data about his son's brain, he grapples a bit with why his son is the way he is. The end of the book is an intense meditation of what his son's life means.
genetic science.. to the extent it unravels the human body, it dehumanizes it. - Dr. Denis Noble.
Buddhists idea of mind.
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